Working together

Working together should and could heal the world.  We live in our own little place in life and as a human I believe that this should not mean we turn our backs to everyone else because of their situation.  I have found in life there are only a minuscule amount of really bad people in the world and the rest are just conditioned by their situations.  Someone may appear bad but this maybe because what they have learnt about the world, if you have to fight everyday for your place in the world I am positive your priorities would be different.  I think the reason that there is such a divide in life is we find it difficult to identify with people in different situations to us, this leads to a stigma or fear about another group developing, which if you think about it is wrong.  We are all the same, trying to get to the end of this experience of life with as little pain as possible, some people just manage this better than others.

Being in a permanent state of pain has made me really think about things lately.  I can not imagine what this experience would be like without the help of my family and friends.  There are people out there that are diagnosed with MS and have no one, possibly have no money to get the things they need and have no one to talk to.  This would be a life sentence of misery for someone and I feel like crying when I think of those people.  I have been trying to think of something that I could do to help these people so the first thing I am going to do is put one of my email addresses on my blog so if anyone that might come across this blog and feel like they want to speak to someone they can email me and I will get back to them as soon as I can.  It is a small step but it might just help someone and that would be amazing.  Sometimes in life all you need is someone to talk to who kind of understand and with MS it is so difficult to explain how it makes you feel the only real comfort you can get sometimes is with someone who can feel it too, or something similar.

I have been thinking of a website to help people with MS, I know that there a loads of sites such as MS Society, MS Trust, Shift but I can't find somewhere with easy access to real people, not another Facebook idea (JAFFA - Just Another F*cking Facebook App) but somewhere that people can leave their email addresses, a picture and then people can find someone that they might identify with and can get in touch with chat to. It is an idea in the making and hopefully a project I can plan out and start work on, it should also give me some scope to play around and pick up on learning programming.

So enough of my plans to change the world and some more about me he he he! The Man, Mum and Dad took me out today and I am so so thankful. To be out and about in Chorlton is like a dream come true, being out and about without the horrendous amount of pain that it usually causes. It might be hard to imagine not being able to walk far but while you read this imagine what it would be like to feel as if you know the pain up your spine is going to be crippling and your legs will start to spasm as soon as you move them. Standing and walking is such a problem for me at the moment but also sitting in Chorlton has its problems as well so I will be happy when I can walk properly again. Funny at the moment that The Man has got himself a new women and he has to push her around in an adult pram, bet he thinks he won the booby prize. He is incredibly gracious about it though and never makes me feel like it is a problem, which is incredible for me but I need to find away to make it up to him.

I must tell you about my doctors visit the other day, I have been signed off for another 2 weeks and that is tough for me because I really really want to just get back to my life but at the moment I know that this is not possible. I am slightly concerned because the doctor did say that they are concerned that if this problem with my bladder continues I could risk my Kidney’s failing which is a slightly bleak possibility. I know that the steroids could kick me out of this relapse but I have also been on steroids before and I know the side effects and how they affect me so I really want to try and avoid them. I will be speaking to my doctor next week though to see if I can relieve this bladder malarky. I think on the whole though I am learning more and more to deal with this discomfort and pain which is a good thing, means life doesn’t seem too bleak.