I have had two bits of good news this week, firstly I had an Urology appointment, I know, toilet talk again. I have had problems with my bladder for a few years now, I self catheterise because my bladder doesn't empty properly. I also have the added complication that I suffer from urgency really badly, never knowing how long I have, which is very rubbish. Anyway back to my point, I had an appointment with Urology and after The Man's help explaining that the medication I have tried has had really bad effects on me (like me not going for a No.2 for 11 days), so they have agreed to do botox in my bladder. If you would like to read a little about this check it out here - Botox in the Bladder. The waiting list is 4 months but it is amazing to finally have a solution to this problem. First bit of good news.
I received a phone call from my MS Nurse, Freya on Tuesday and she informed me that they would like to do an assessment to check my suitability for this new drug Fampridine. It has shown in the test to improve MSers walking, in honestly only in 30% of people but that is a 30% extra hope that I am willing give. The assessment is next Tuesday and is 3 hours long and then I have to wear a monitor for 48 hours so it is an intensive process, I just hope I am picked. On the plus side Freya and Dr Schmierer seemed positive at my chances so I will just keep my fingers crossed. I guess we will never know unless I try. Second bit of good news.
I have another weird thing to tell you which isn't that pleasant but remember that honestly thing we agreed on. I have had an issue with my throat/tonsils since I was about 13 and it is finally coming to be a real issue. I believe that I have pitted tonsils and I get tonsils stones which is very uncomfortable, causes me to choke and then I get these horrible white stoney things that I cough up. I know you are thinking...yuk! Just think how I feel. Well I have a doctors appointment tomorrow about this and I have even put one of these horrible little things in a sample pot to take with me. I am hoping that with my private medical care I might be able to get my tonsils out because this issue has been going on far too long. There is no treatment or no effective treatment to this problem so I will see what Dr Dougall has to say about it. Bet he is going to love my little gross sample pot. I will let you know what the verdict is.
Oh and finally I had my last appointment with my Psychologist, Rachel and she gave me my results from the Neuropsych tests we have been doing and my cognitive skills on the whole are ok. I did score slightly lower on tests that required me to concentrate on different things at the same time but I knew I had issues with these situations anyway. She also gave me a goodbye letter to close our sessions and it said some lovely things which I really appreciate. I would definitely recommend seeing a Psychologist because it has helped me so much. I am sad that our sessions have come to an end but I do feel ready to take a leap of faith in my own ability to manage life without her. Another postive this week.
Right my back and legs are killing me so I am going to go lie down on Buzz, to ease some of the pain. All round though life looks better and better each day.
Love to you all